What we do

The services we couldn't run without your help


We don't charge children and young people membership fees, meaning we rely entirely on volunteers, donations and members' fundraising to enable us to:

  • Run the AYME information and helpline telephone and email services every working weekday of the year  
  • Support our National Support Workers to help young people and families in crisis across the UK
  • Provide 24 hour emergency support, seven days a week to those in times of crisis
  • Run our online services, including forums, message boards and social media accounts, which break down the isolation often felt by young people with the condition
  • Offer and develop our award-winning volunteer programme, currently made up of more than 65 volunteers
  • Develop expert content for our website, providing up to date guidance and information to young people, and those who care for them, on topics such as education, health and diet
  • Campaign tirelessly to raise awareness of ME/CFS, and ensure policies and practices are routinely re-assessed and revised to best reflect the needs of young people affected by the condition
  • Be instrumental in coordinating an online ME clinic with the Talk Health partnership, attracting thousands of visitors from all over the world
  • Set up local 'focus' group for AYME members and held social gatherings supported by the MK Community Foundation 

How your money helps

Without your generosity, we couldn't run our services. Every penny you donate goes directly towards helping AYME support young people with ME/CFS, and break the isolation associated with living with this chronic condition. 

  • £20 would pay for a variety of promotional items for people to sell and raise more money
  • £50 would help fund a National Support Worker to visit a child in crisis
  • £100 keeps our life-saving emergency response service going
  • £500 would help AYME fight the ignorance, injustice and neglect that still surrounds this condition

How your money helped in 2013 

  • We were able to respond to 1,000 requests for help received by our helpline.
  • We appointed two National Support Workers who have already supported 189 children and young people in crisis or with complex cases.
  • Engaged young people, parents and members in a consultation to amend the Children and Families Bill, to see improved support in schools for children with medical conditions , released May 2014.
  • Attended networking event at Westminster to raise awareness of ME/CFS.
  • Attracted nearly 79,000 visitors to the AYME website, enabling them to benefit from the detailed information available from this vital resource.
  • Enrolled 364 new young members.

Supporting what we do

There are three main ways you can support the work that AYME does with and on behalf of children and young people with ME/CFS:

  • By making a donation or fundraising for AYME
  • By volunteering (AYME members only), helping to provide or support AYME services 
  • By becoming an AYME Ambassador; speaking or carrying out PR activities for AYME