Our stories

"A life with M.E./CFS is one of uncertainty and indecision."

Read Sophie's story

Jane shares her heartfelt account of what it's really like to have a child with M.E./CFS, and her deep pride in her daughter.

Read Jane's story


"I remember during a football match, curling up at the side of the pitch because I was so, so tired."

Read Sam's story


"I really had a huge weight lifted off my shoulders when I found out for sure that I had M.E./CFS, as it explained so many unexplained events in my life."

Read Charlotte's story

"I am still searching for answers and solutions to get me through the rest of my life. But I have also fought to take control of my life and I am determined not to be beaten."

Read Skye's story

"Before we were in contact with AYME our stress levels were far higher, as it felt as though we were so isolated and there was nothing we could do to improve our situation."

Read Deborah's story about being mother and AYME Parent & Carer member


"I am now living a life I once thought had been taken away from me; and one that, for many years, I thought would never be possible."

Read Darrell 's story


"I learned from all these setbacks not to rush and be patient, which I know is very hard."

Read Matt's story


"I was 14 when I first got ill. I would come home from school at 3:30pm, sleep until 7:00pm, have dinner and sleep until the next morning. This continued for three months whilst I was back and forth to the doctors with what they thought was glandular fever."

Read Kirstie's story


"When the consultant diagnosed me, it was a relief to have someone believe I was ill. But very little was known about ME back then, so it was all quite confusing."

Read Leshia's story


"I really wanted to give something back so I started volunteering... I gradually worked my way up the ranks until I became the Membership Services Team Manager and the Editor of Cheers."

Read Kat's story



"Right now, coming out of the other side of illness, I feel like the world is my oyster and I intend on making the most of it..."

Read Lydia's story



"To see your child in so much pain and be unable to give them a reassuring hug is simply heartbreaking... AYME has been the best part of our journey."

Read Lisa's story


"I joined AYME in 2003... during that time, I have watched people grow up with the same illness as me, and seen how it affects everyone slightly differently, and sometimes the same."

Read Jet's story