Jane shares her heartfelt account of what it's really like to have a child with M.E./CFS, and her deep pride in her daughter.
"I remember during a football match, curling up at the side of the pitch because I was so, so tired."
"I really had a huge weight lifted off my shoulders when I found out for sure that I had M.E./CFS, as it explained so many unexplained events in my life."
"I am still searching for answers and solutions to get me through the rest of my life. But I have also fought to take control of my life and I am determined not to be beaten."
"Before we were in contact with AYME our stress levels were far higher, as it felt as though we were so isolated and there was nothing we could do to improve our situation."
"I am now living a life I once thought had been taken away from me; and one that, for many years, I thought would never be possible."
"I learned from all these setbacks not to rush and be patient, which I know is very hard."
"I was 14 when I first got ill. I would come home from school at 3:30pm, sleep until 7:00pm, have dinner and sleep until the next morning. This continued for three months whilst I was back and forth to the doctors with what they thought was glandular fever."
"When the consultant diagnosed me, it was a relief to have someone believe I was ill. But very little was known about ME back then, so it was all quite confusing."
"I really wanted to give something back so I started volunteering... I gradually worked my way up the ranks until I became the Membership Services Team Manager and the Editor of Cheers."
"Right now, coming out of the other side of illness, I feel like the world is my oyster and I intend on making the most of it..."
"To see your child in so much pain and be unable to give them a reassuring hug is simply heartbreaking... AYME has been the best part of our journey."