Thank you to all our fundraisers!

Scroll down to see the amazing fundraising achievements our supporters have achieved. 

The money raised by our supporters is vital to the running of AYME. Without fundraising, we couldn't keep doing what we do. We're so grateful to all our fundraisers that we want to share the latest news of what they've been up to!

Joe's dad, Mike, completes the Keswick to Barrow Walk - with friends!
Mike Mulrenan and his friends Steve Robbins, Nandeep Chaggar, Dave Smith, Steve Braid, Jacob Snelson and Vince Quigley completed this charity walk to raise funds for AYME in May.

"What mostly got me through to the end was pacing myself through the 42.6 miles together with mind over matter and the belief that I would succeed," says Mike. "This is what you as M.E./CFS suffers have to do every day and I should know - I was diagnosed with your disability 12 years ago. It's amazing what you can achieve and what is possible with a bit of determination, pacing and the will to succeed."

You can read Mike's full story here.

Four runners tackle the Great North Run for AYME
There was certainly plenty of sunshine when Will, Claire, Jelle and Chris took to the streets of Newcastle for this year's Great North Run on 7th September. The runners raised an incredible amount for AYME, and we're hugely grateful for their takng part. Thank you everyone and we hope you get a well deserved rest now! 

Craft stall sells out of cake
AYME member, Alice, and her sister ran such a successful craft sale this summer that they totally sold out of cake! The pair raised over £200 with their stall, which stocked everything from cake and lemonade to jewellery.

Thank you both so much for your efforts, and for sending us pictures of your wonderfully colourful stall - we think it looks fantastic!

AYME member leads team at East Riding College to raise money in enterprise task
Thank you to AYME member, Melek, and everyone at East Riding College for the incredible £336.12 they raised with an enterprise task this summer.

The team produced a wide range of delicious cakes and came together to sell them at three separate sales. Special thanks also go to Dean, Louise, Melek's Mum and brother and Louise's sister and Mum for their help too!

Team effort raises over £400
Julie and Ben Pearson, along with family and friends, have raised £421.15 for AYME through their recent fundraising efforts. A coffee morning was teamed with an epic channel-swimming challenge, which saw a team together swim 21 miles in Nantwich swimming pool for the charity. Ben, who is 15 years old and still suffering with ME, opened the swimathon, sucessfully completing the first two lengths himself!

Thank you so much for everyone involved in raising this incredible money for AYME, as well as other charities working hard to support people with ME/CFS. 

Swimathon donated £25,000 to local charities, including AYME
AYME was one of six charities who shared the £25,000 raised by the swimathon organised by the Milton Keynes Rotary Club this June. There were several different events, entered by everyone from young carers to Rotary members themselves.

AYME is hugely grateful for the continued support of Milton Keynes Rotary Club and is delighted to have benefited from this year's event.

To read more, click here

Performing arts school raises over £500!
Organised by AYME member, Skye, the Myra Tiffin Performing Arts School has raised a whopping £572.98 for AYME! The whole school got behind a raffle and merchandise sale to raise the impressive amount, and we're so grateful for your wonderful help!

We love this picture of Skye collecting the cheque from some of the art school's dancers!

Rotary chooses AYME as charity for the year
Our ongoing thanks to the Rotary Club of Milton Keynes Grand Union for making AYME its chosen charity for 2013/14. Your ongoing fundraising efforts and support are really appreciated!

Mother and daughter bake up a storm at College fundraiser
During ME Awareness Week, Rose and Katie organised a cake stand on the day of Lancaster and Morecambe College's sports day. Students were able to purchase delicious cakes, as well as learn more about ME/CFS using activities divised by Rose and Katie themselves. It looked like the day was a lot of fun, and we thank Katie, Rose and everyone at the College for their support!

Everest is no match for Angela
Angela Weeks, JCT-600's brand financial controller at Mercedes-Benz in Sheffield, has scaled new heights to raise funds for AYME by completing a 14 day trek to Everest base camp, including ascending 17,600 feet above sea level!

The trek brings Angela's fundraising total to an amazing £770, and she's already planning her next challenge - a half-marathon in June. Angela, you are an inspiration!

Amelie gets reading for ME Awareness Week!
10 year old AYME member, Amelie, set herself a tough challenge for this ME Awareness Week, and read 15 books in the course of just 7 days! Amelie raised over £100 with her readathon, and everyone AYME, her family and Louis the dog are all very proud of her!

JCT600 team 'AYME' high with Three Peaks fundraiser
The JCT600 team have once again donned their walking boots for charity, climbing 5,000ft as part of the company's annual Three Peaks challenge which is this year raising funds for AYME, as the company's chosen charity. 

On Saturday 17 May, more than 100 colleagues from the Yorkshire-based car retailer undertook the challenge of completing the gruelling walk to scale the county's three highest peaks, covering an impressive total of 2,450 miles between them. Well done to everyone who took part, and supported the walkers on the day. An extra round of applause goes to Angela Weeks, who completed the challenge twice in 24 hours! To read the full story of how JCT600 got on, click here

Classic cars raise over £500!
18th May was a busy day for the team at Bentley Leeds! 30  Bentleys drove through Stage One of The Yorkshire Grand Depart, and the team organised for the fleet to raise money for AYME. £540 was kindly donated by attendees at the event. Don't the cars look beatufiul glistening in the sun?! Thank you to the whole team and everyone who kindly donated on the day.

Sister fundraises to buy her older sister some energy

Five year old Lilly wanted to raise some money to buy her older sister, who has ME/CFS, some energy. 

With the help of family and friends, Lilly got everyone involved in a sponsored walk during ME Awareness Week, which raised a staggering £315.57!

Lilly's mother, Karen, says: "Lilly is so happy, I asked her how much she thought we raised and she said about a hundred. When I told her it was 300 she was so excited! 

"We're writing thank you letters to everyone who donated prizes and we are including a brief description of ME and AYME, so hopefully my Lilly will have raised awareness as well as money!"

JCT600 team runs away with amazing fundraising success
The weekend of 10/11 May was a busy one for the team at JCT600, with staff running in both the Kirklees 10K and Leeds half marathon races. Along with her partner, Glenn, Danielle - JCT600's VW Market Area Accountant - completed the Kirklees 10K in a fantastic time. In her first ever race of this distance, Danielle finished in a time of 1 hour and 6 minues, raising a total of £170 plus gift aid for AYME. 

"I didn't think I'd be able to say I could run 6.2 miles a few months ago," commented Danielle.

The 13.1 miles of the Leeds half marathon were tackled head on by JCT600's Kirsty, who finished in 1 hour and 47 minutes, shaving 7 minutes off her personal best and raising over £500 for AYME!

We're blown away by the continued efforts of this wonderful team and wish them all the best in their next challenge, the Three Peaks!

Books sale is roaring success
We were delighted to hear from Lisa, who has been doing a lot of fundriasing for AYME, with a personal message for those who supported her sister's recent book sale. The event was hosted by Lisa's sister, Paula, in support of the charity. Lisa commented:

"I would like to personally thank everyone who came along and helped to raise £208.49. This was made up from donations for second hand books; a beautiful arrangement of flowers raffled by Claire Clark of Peartree House Flowers, Ilkley; and sale of my own handmade greetings cards.

"With the approach of ME Awareness Week, this event has helped to raise the plight of people who suffer daily from this dreadful invisible illness, including my own 13 year old daughter, who has now been battling with this for 3 1/2 years."

Thank you, Lisa and Paula, from everyone at AYME for putting on this great event.

   Northampton construction group raises £50,000 for AYME over ten years

The Northampton Construction and Property Forum, a networking group for Northamptonshire's construction industry, has raised a total of £50,000 for AYME. The group of 240 members helped achieve the impressive donation through a series of events held across ten years, including gold days and black tie dinners. The collective effort continues from the work of the Milton Keynes Forum, which moved to Northampton five years ago.

Thanks to the whole forum for this amazing effort!

Staff at Yorkshire-based family motor retailer JCT600 chose AYME as its annual nominated charity for 2014, and staff have already raised over £7,000!

All of the company's 47 dealerships have been challenged to raise at least £10 per colleague for AYME during the year with the target of raising at least £18,000 for the charity. So far, they have held an incredibly successful quiz night - and you can watch their amazing total go up JustGiving (and maybe add to it if you wish!)

Looking back over 2013

Hazel and Snowdrop hopped to success! 
During ME Awareness Week Isla organised a 2 day sponsored bunny hop for AYME, getting her two rabbits Hazel and Snowdrop to jump over jumps in her garden. Isla said "my rabbits have helped me a lot and I spend lots of time playing with them in the garden. I am sure they will want to help me raise money!"

Hazel and Snowdrop managed 424 jumps over the weekend. They did amazingly well especially as there were lots of squealing overexcited 7 year olds cheering them on! Well done Isla in raising over £800!

Coast to Coast 
Thomase from the Isle of Man completed a 7.5 mile west coast to east coast sponsored walk during ME Awareness Week. Half of the money he raised will be going to AYME "as this charity helped me come through the worst of my ME."

Thomase's friend Toby also wanted to help raise funds and awareness by having his legs waxed – ohhhh!

No hair day
Jet, one of our severely affected members (SAM) shaved all her hair off for ME Awareness Week. We asked her why... Jet said "Because AYME has helped me during my most isolated times, by providing a buddy to write to me, sending me cards on birthday and Christmas, providing a forum where I can chat to fellow sufferers and make friends, and by having a helpline to give information or just chat to on a rough day or if anything is bothering me. AYME has made a positive difference to my life and I wanted to say thank you and give a little something back – and of course, raise awareness of this dreaded illness."

Most of the money raised by Jet was done so online via her justgiving page. Jet has left the page open until the 18th July to try and raise a little more money, so if you would like to make a donation please do visit.  



Luke walks for ME
Luke organised a fundraising event for people with ME called 'Walk for ME' . It was different to most ME Awareness events, as the idea was for family and friends of a loved one who do the walk for them, hence the name Walk for ME. Luke said "A number of ME charities will benefit from the event, including AYME." 

Polly gets the chop for AYME!
Polly, a teenager from Helston, has more reason than most to wrap up warm with a woolly hat when it's cold, after having all her hair shaved off for charity. Sixteen-year-old Polly underwent the chop to fundraise for AYME, which has been a lifeline for her in recent years.

AYME helped Polly connect with other young people with the condition elsewhere in the country, making friends that she can now talk to over Skype to share their experiences and support each other. AYME has also provided both her and her family with information about the illness and what can be done.

Her mum Sarah said: "I am so proud of her. I was more nervous that she was! She didn't mind at all. It's taking a bit of getting used to."

Polly thanks everyone who has donated money, especially everyone at Andy's Barbers for carrying out the shave and also all donating towards the cause. Initially setting herself a target of £250, Polly has now far exceeded that by collecting £1,000 for AYME.

Alice climbed Mount Kilimanjaro to raise awareness of ME/CFS and the impact it's had on her sister, Jenny

Alice explains: "Before this illness struck Jenny was a carefree, happy, energetic 10 year old who ran everywhere (rarely walked!) and lived life to the full. Overnight that was taken away and since then she has missed out on so many things that we all take for granted. I have seen firsthand how disabling, isolating and misunderstood the illness is and how much more research is needed into finding a cause and cure".

"Thank you so much for sponsoring me and donating to AYME. The support meant a lot and I couldn't have done it without knowing that all my friends and family were behind me. Your generosity helped me raise £3,120 which is more than I could have ever hoped for." 

Kate zips over the River Tyne!

Kate Stanforth, a member of AYME, zip wired off the Tyne Bridge in Newcastle in May 2013, to raise awareness and money for AYME.

"I managed to raise a total of £557 for AYME and appeared on ITV News, my local newspaper and Newcastle Falcons Rugby Programme!

The picture shows my friend Katie (right, who also has ME) and myself before we did the zip wire! 

Sponsored walk by Anna
Anna completed her sponsored walk in Plymouth for AYME during ME Awareness Week. Her local university student union put details on their website newsfeed to help promote the walk and she has created a facebook page and set up a justgiving account:

If you are planning an event or would like support, please get in touch with us at



From ME to a marathon... 15 years in the making

15 years ago Amelia Nash was recovering from 5 years of suffering with ME/CFS. "It was a very tough 5 years and I was lucky that my family supported me and believed in me. I didn't believe in myself, I didn't really know why I was ill or what I could do about it, I was frustrated and felt that I was missing out on life, I didn't want to be stuck in bed but I couldn't muster the strength to do much more.

"All those years ago AYME provided my family and I with support, they recognised that ME was an illness and also recognised how lonely it can be for both the sufferer and the family. They provided practical support and reassurance that resting and listening to my body was the key.

"Last May day bank holiday I ran 26.2 miles, I would never have thought it possible back then, nor was it something I thought I could do even a year ago! I would like to say to all those suffering with ME, and all those supporting those suffering with ME, please don't lose hope, you will get there, be patient with yourself and your body, and listen to it. There are good days, and there are bad days, but try to think about the good ones on the bad ones, and take things slowly. You will get there!"

Karran completes Lochaber Marathon

From a young age I always watched the London marathon and wondered if I could run a marathon one day. I loved sport as a kid and my passion for keeping fit and running has continued into adulthood. When I was 13 my world came crashing down, I became ill with ME and the next couple of years were a struggle to say the least. The furthest thing from my mind was running a marathon, getting out of bed was tough enough. On some of the most painful days there seemed like there was no escape but I wanted to share my story to give you hope because there is light at the end of the tunnel and you can achieve your goals.

I was advised by my physio to try light exercise as difficult as that might be - even a couple of steps first if you are bed ridden to try and get the muscles back working again. I began by taking up light swimming with my Dad. This seemed to be the start of the journey to recovery…it was a slow journey with lots of ups and downs along the way but there is hope. I urge you to never give up and try to remain positive as difficult as it can be.

Completing the Lochaber Marathon this Sunday was an amazing day for me personally, I was hugely motivated for selfish reasons of achieving this personal goal but over riding all of that was my desire to remember how far I had come and thank AYME -the charity who did so much for me when I was suffering with ME. So far my Justgiving page is at just over £330, and I am hopeful over the next couple of weeks we will make £400.

Becca completes the Great North Run –
the world's largest half marathon





"Sheila at AYME mentioned the Great North Run to me and my mum earlier in the year and we immediately agreed to do it, with plans for my mum and Sheila to take turns pushing me in my wheelchair around the 13.1 mile course. I'm so glad we did agree to it because we had such a brilliant day taking part and raising money for AYME in the process just made it even better.

"It took a while for us to reach the start line after the run was officially started but when we got there; we were greeted with high fives from Olympic athletes Greg Rutherford and Nicola Adams! From then on, there was support from so many people on the side lines who were waiting out in the rain to cheer on all of the runners. I carried a bucket the whole way round and we raised £75 just from donations in the bucket! People also gave us biscuits, drinks, fruit and even a cup of tea! The support from all of these people really did give us a huge boost and kept us going.

"When we reached the final 400m, I got out of the wheelchair and walked the final part of the course and across the finish line. Just before the finish line, me and my mum were interviewed in front of the crowd that had gathered and the support from them as I walked over the finish line was incredible.

It was such an amazing feeling and the three of us crossed the line in 4 hours and 12 minutes and raised a total of around £540!