Important news

We are pleased to announce that AYME will soon be joining Action for M.E. This will take place on Monday 3 April, when AYME will close and Action for M.E. will launch a new Children's Services Team.

Our Chief Executive Mary-Jane Willows will lead Action for M.E.'s Children's Services, and we are undertaking consultation with our staff regarding their transfer to our team.

AYME has been running for 21 years now. Since that time we've welcomed thousands of members; we've been right there with many of them during some very difficult times, as well as some really positive moments and achievements. But now it's time for a new chapter, and we hope you'll join us.

The Boards of Trustees of both charities wholeheartedly believe that this decision will benefit children, young people, adults and families affected by M.E., for three key reasons:

1. We can support more people, more effectively.
The services that have been provided by AYME will, from Monday 3 April, be offered by experienced staff and dedicated volunteers as part of Action for M.E.'s Children's Services Team. Every child, young person, parent and carer who currently makes use of these services can continue to do so.

By integrating services for children, young people and adults with M.E., we will improve continuity of support across all age groups. Not only will we continue to ensure that people affected by M.E. can access the information and support they need, at the time they need it most, but we will also develop our services to reach even more people.

2. We can work more efficiently.
We want to make sure that every penny raised to support children and adults affected by M.E. goes as far as it possibly can. We are confident that, by delivering services in this way, we will create better value for money and be better able to secure additional resources to increase the work we do.

3. We can speak louder and with one voice.
By supporting both children and adults in this way, we can create more opportunities to raise the profile of M.E. and its impact. We will continue to keep the voice of children and adults affected by M.E. at the heart of everything we do.

We are writing to all AYME members and affiliates to tell them about this decision and ensure they understand what it means for them. We can reassure you that the services and support AYME has offered up to now will still be available.

To find out more about how this decision was made and the right person to contact for more information, please read our FAQ.

CALL 0330 2211223
Monday to Friday, 10am - 2pm (excluding Bank Holidays)

Education | Health | Advice | Support

Backed by 20 years of experience and professional advisors


The Association of Young People with ME (AYME) is a UK charity that provides support for children and young people aged up to 26 who have M.E./CFS. AYME is also here to help and support parents, carers and professionals in health, education and social care. 

If you are a registered member and have forgotten your username, please email onlineservices@ayme.org.uk with your full name and we will be able to help you.

 

 

     

 

www.NSPCC.org.uk/ShareAware
www.GetSafeOnline.org

 

 

 


AYME is a registered charity 1082059, company registration 03981646.

Privacy and Data Protection
AYME exists for its members, who are young people and children. To ensure the protection of these members, their families and/or carers, every effort is made to maintain the security/accuracy of any data held and to monitor the integrity of the advice and support given by AYME. AYME is registered under the Data Protection Act, no. Z9020055.

We use cookies on this website. Please disable them if you do not want them stored on your computer, as they contain user information. Please refer to your ‘Help' menu or visit: www.allaboutcookies.org (please note that this may affect your access to the members' area and message board).

Privacy Policy Statement
Data Protection Policy Statement
More DP information on: www.ico.gov.uk/what_we_cover/data_protection.aspx

 

News

AYME launches survey to shine light on the real impact of false accusations against families of young people with M.E./CFS

False accusations against families affected by M.E./CFS have devastating consequences. We've launched an important survey to get to the bottom of just how common these accusations really are. We can then use the results to inform government of the need for change and the importance of family support.

Read the full story here

Whatever your experiences have been, please take just a few minutes to complete this short but important survey: 

https://goo.gl/7MlqfG

 

Testing online treatment for chronic fatigue syndrome (CFS/ME)

Over 700 children and young people are to take part in the largest clinical trial ever undertaken in Chronic Fatigue Syndrome (CFS) - find out more on our News page.

Time to celebrate

Find out what's happening as AYME turns 20!

What matters to children with M.E./CFS?

New research explores the aspects of life and health outcomes that matter to children with M.E./CFS.

PLUS...

AYME Supporters
For friends and professionals and all those who wish to support us in the work we do; and receive news, research and fundraising updates.

Parents and Carers (previously LINK)
Being a family member of a young person with ME/CFS comes with its own set of challenges, which is why we set up the Parents and Carers group - to equip you with the support and information you need, every step of the way.

Find out more 

ALSO...

Please share your stories and experiences with us. Those we've received so far are truly inspiring, and can bring hope to young people, and their families and supporters.
Email pr@ayme.org.uk and ask for a template.

Read our inspiring stories